Good Riddance to 2013

Sunday, December 29 - Thought I better post what has been going on since early December so I can close out 2013.  My good riddance is for the cancer.  The highlight of my 2013 was Adam & Ann getting married and doing well.  Adam's 3 year transplant follow up was filled with good news and he is doing great.  Our family vacation to Orange Beach was a lot of fun and some well needed time together.

After my visit in early December with the Oncologist, I was referred to Mercy Integrative Services at the Cancer & Breast Center to see if any of their options would be of help now that I was finished with chemo and radiation.  I decided it would be worth a shot before going on the medication that was also recommended.  After researching the medication, it kind of scared me with the side effects and withdrawl symptoms when discontinuing.

I met with Dr. Michelle Smith, DPC and after a thorough discussion on what had been going on since chemo, she said that physical therapy or acupuncture could be of some help.  I had talked with several people who had had acupuncture with promising results so decided to try it.  She would target the neuropathy, taste issues and pre-cancer back issues that seem to have redeveloped.

I have had four treatments.  Needles were placed in my nail beds 10 in each foot and the right hand.  They will stay away from left arm do to lymphedema issues.  I also had them in my ankles and ears.  There was a little discomfort as she stuck them in each nailbed but nothing that didn't subside right away. The neuropathy is still there although has lessoned.  The last two treatments she has added putting on electric current between a couple of the needles.  Back issues also seem better and I finally have taste again.  Although losing 40 pounds due to chemo wasn't the ideal way to lose weight, I'm hoping to keep it (or most of it) off.  I plan to have a couple more treatments hoping to have even more progress in this area.

I also had my follow-up bladder scope.  No cancer or other issues.  She will follow-up with me in six months, just to keep an eye on things.

I had a mammogram on the right side and met with my surgical oncologist.  I was a little concerned as I thought I had felt a small lump but thought it could be scar tissue from the papiloma that they removed on that side when they did the mastectomy.  I was right and the mammogram came back clear.  So unless I notice something I won't follow-up with another until next December.  Yay!!!!

To finish out the month I met with my radiation oncologist and everything is healing nicely as far as the skin is concerned and I don't have to see him for six months.

The appointment I was most excited about was seeing the dentist for a teeth cleaning.  I wasn't able to do this at all during treatment due to the amount of bacteria in the month and concern of infection.  It felt so good.  I do have to make a return visit though, as chemo is also hard on the teeth and I have developed a cavity.  Not as excited for that visit, but knew something was going on.

Dane & I headed to Joplin on the 23rd for Christmas.  We were able to have some adult time with Adam and Ann as Brayden wasn't able to come to us until Christmas morning.  It was a great relaxing visit with Church on Christmas Eve, a yummy Christmas dinner and, of course, gifts.  It warmed up a bit and we even got outside for a walk.

Speaking of walking, I actually went a mile yesterday.  I am seeing progress in energy level and starting to feel like my old self.  I am ready to put cancer behind me and look forward to the next year.  My wish for all is a happy, HEALTHY, new year.  Again, I cannot thank you enough for your support during my journey.  I would not wish cancer on anyone, I had no idea what people went through and it breaks my heart every time I hear of someone else that has it.  It seems to be affecting a lot more people every day.

• Family & Friends: the walls of my life behind which I could find shelter from the winds, and could lean upon when weary.

3-Month Follow-Up With Medical Oncologist

Thursday, December 5 - Today I had an appointment with my Medical Oncologist.  Dane drove me in to the Breast & Cancer Center.  Thankfully the weather was fine with only a little sleet here and there.

My weight was down another pound but all other vitals within normal range.  Blood was drawn.  I was mostly interested in my WBC to see if I could get my flu shot.  Unfortunately, it was 2.7 with normal range being 4-9.8 so flu shot is again on hold.

We discussed my visits with the Urologist.  Dr. Coplin was pretty confident that my issues were caused by the chemo that I had.  Chemo can cause interstitial cystitis. This is an inflammation of the bladder walls.  I am not having anymore symptoms but will have a repeat bladder scope on the 17th of this month just to check the bladder walls and see if the inflammation is still there.  Stay tuned on this one.

I'm still having taste and appetite issues.  I think I have been diligent in trying to eat and to eat healthy.  I pretty much only drink water and have added V8 to my diet to supplement vegetable intake.  Food just doesn't hold much appeal to me at all, so I have to continue to work at this. I have still been having some nausea problems, but had quit taken Prilosec.  If this continues I am to go back on the medication to see if that helps.

We talked about the neuropathy and again she said that it will take time to leave.  In the meantime she is putting me on a medication to see if it helps.  I may also see a pain specialist to see if there are any options for help in this area.  I try to get out and walk but can only go a little over 1/2 mile before my sciatica or back start to ache (as well as the feet).  

Next on the list was whether or not I would be getting any scans to see if the cancer was gone. Dr. Coplin said that we would not be doing any.  CT scans, bone scans and chest x-rays are not a standard part of follow-up.  Getting these tests won't help a woman treated with breast cancer live longer.  They will be done (as indicated) if I have symptoms or physical exam findings that suggest the cancer has recurred. 

Next on the list is my follow-up with radiation oncologist this month and getting in a visit to the dentist. My skin is looking really good and getting back to normal.

Meanwhile, my hair continues to grow and I am feeling better as each day passes.  As everyone keeps telling me, it will just take time.  So I will hurry up and wait!!!!!

Until next time, thanks for reading and keep those prayers coming!

Better is the end of a thing than its beginning,
    and the patient in spirit is better than the proud in spirit.  Ecclesiates 7:8

Radiation Over And Tid Bits

Saturday, November 16 -  Since it's been almost a month since I posted, I have a lot of catching up to do. Sorry about that, but didn't feel up to it most of the time.  Typing has been hard for me due to the neuropathy in my hands and feet.

I was told that I would not have to have my last 5 radiation treatments, so finished radiation on Friday, November 8.  It was a happy day, but surreal.  I couldn't believe I was finally done.  I ended up having 28 total instead of the original 33.  I will follow-up with the radiation oncologist in December to get my skin checked again.  I am pretty sore, but keeping it covered with Aquaphor and some Gold Bond Healing Lotion.   I am starting to peel in the armpit and the other areas are getting browner.  I was told to expect this for the next 4 - 6 weeks.

I also went and got fitted for an arm sleeve since I have minimal lymphedema.  They had to order it, so gave me a back up generic one to wear in the meantime.  It does make my arm feel better.  I only wear it during the day and expect to pick up my custom one on Thursday.

I have lost about 35 pounds since this journey began.  I still don't have much of a taste or appetite, but expect this to improve as time goes on.  I have a hard time standing for long periods, but have been trying to walk as much as I can.  The neuropathy seems to be ok when I wake up and gets worse as the day goes on. The past couple of weeks it has been very painful in the evenings feeling like someone is jabbing me with needles.  I'm still praying this gets better and doesn't become permanent.

I still tire out very easily, but this is starting to improve.  I had my port removed yesterday (Friday, November 15).  It was one more thing to cross off my list. Yay!!!!

A few days before my cystoscopy (bladder scope) I started to get another UTI.  She went ahead with the scope, gave me antibiotics to treat infection and sent it off for a culture.  She didn't think I had cancer but bladder was very inflamed and wants to repeat next month when my infection clears up.  If it still is infected and inflamed, she will biopsy.  Previous blood work and ct scan ruled out kidney stones.

So the rest of the year will be spent going to my follow-up doctor appointments, and continuing to heal.  I don't know right now if any scans will be done.  I know they do watch the blood every 3 months to make sure the cancer antigen stays at a good level.  So stay tuned on that..  I see my medical oncologist on December 5.

Oh yeah - my hair is coming back in lots of peach fuzz!!!!  AND I have eyebrows and very short eyelashes!

So again, I thank you all for the prayers, good thoughts, cards, meals, phone calls and visits - not to mention all the rides to my appointments.  Thank you doesn't quite put into words the gratefulness I feel.

14 Down 20 To Go

Friday, October 18, 2013 -  Thought I'd post an update on the past week.  I met with my radiation oncologist on Tuesday and my skin looks good.  I'm noticing a little burning under my back shoulder.  The creams and lotions seems to keep it at bay.  He did measure my left arm and is referring me back to the Physical Therapist Lymphedema Specialist as he thinks I may be developing some in the upper left arm.  I couldn't get an appointment until next Friday, October 25.

Also on Tuesday I met with the Urologist Dr. Elizabeth Williams.  She ordered a CT scan  and x-rays which I had this morning as well as some  blood work to check my kidneys & bladder.  On November 12 I will be having a cystoscopy in her office.  These tests will rule out kidney stones and bladder cancer.  Dr. Williams seemed confident it would not be cancer, but since I was on Cytoxin for one of my chemo drugs, this can be a factor.  With my history, she doesn't want to take any chances.  I am no longer having blood while urinating or having the pain and burning.  The urine sample came back negative,  but so did the last two I had when I was having the blood.

I was early for all my radiation trips this week and was in and out.  Takes me longer to undress and redress than to get the radiation.

My frame of mind has been a lot better this week.  I am also noticing a little more fatigue, so I usually nap for a while when getting home.  Thanks to all that have driven me over in Dane's absence.  You'll never know how much you are appreciated.

So I'm hanging in there - keep those prayers coming!

Radiation Update

Thursday, October 10 - I started radiation on October 1.  As stated, Dane was able to get me there that whole week.  I'm still not driving due to the neuropathy that is still present in my hands and feet.  It seems to get worse at night.  I still have a lot of fatigue from the chemo.  I was told the effects of the radiation would take a couple of weeks.

I met with Dr. Frazier, my radiation oncologist on Tuesday after my 5th treatment.  He looked over my skin to make sure everything was in order and it was.  I will see him every 5th treatment.  Today is the first day that I have felt some burning like I have a sunburn under my left arm.  I am using Aquaphor to help with that along with some moisturizing lotion as my skin is really, really dry.

An x-ray, also known as a "port film," was taken by the radiation therapist on the first day of treatment and every 5th treatment. Port films verify that you are being positioned accurately during your treatments.

Port films do not provide diagnostic information, so radiation therapists cannot learn about your progress from these films. However, port films are important to help the therapists maintain precision in your treatment.

Dane & I went to Webb City (where Adam & Ann live now)  the last weekend in September as I haven't seen Brayden since the wedding.  It was a much needed visit for me and boosted my spirits.  It rained all day Saturday, but Sunday was beautiful so a lot of the day was spent outside.  We came home on Monday and I started radiation on Tuesday.

So I have 26 treatments left and moving right along.  Thanks to those who have driven me over.  Please continue to pray that this neuropathy leaves and things get back to normal.  I am having more good times during the day so that is promising.  

Psalm 46:1 “God is our refuge and strength , an ever-present help in trouble”

Radiation Scheduled

Thursday, September 26 -  I know I haven't been updating this blog very good.  There really isn't a lot to report.  I'm still trying to recover from the infections and the Taxol  I received on Sept. 4.  I have had a few days where I was feeling pretty good for a few hours, but for the most part, nothing has changed.

Dane did take me to Washington for my CT scan and mold to get ready for radiation.  I was marked with pen size tatoos to line up the beams.  I will go in Oct 1st after mold is made and all the mapping is done to figure out where the radiation beams should be in accordance with my anatomy.  I will have the chest area where the mastectomy was performed and also the armpit where the lymph nodes were removed.  I will have 34 sessions every day except weekends.  My last day should be Nov. 15 if all goes accordingly.

Although radiation does have several side effects the most common are the fatigue (cumulative) and possible burning of areas being treated.  I will  be given lotions to help me out with this.

Since I'm still not driving due to my numb feet and weak legs, I will be calling on a few of you to help me get there if I don't see any improvement in my legs in the near future.  Dane will be taking time off the week I start for sure so that one is covered.

Again I ask for prayers of strength and patience while I finish up this last leg of treatment.  Trying to stay strong!

Update on Past Week

Wednesday, September 18 -  Here I am at 4:00 a.m. not able to sleep again.  I thought it would be a good time to update the blog on what has been going on the past week.  I am excited that I do not have to go to chemo today as originally scheduled.  In fact, I'm still trying to get over the last one two weeks ago.  I was told that most people (about 95%)  breeze through Taxol treatments, but unfortunately I was in the 5% that didn't do so great.
 
When Dane and I went in last Tuesday, September 10 I was super excited to hear this news as previously reported. The fluids I received seemed to help some.  I was right back to feeling awful again on Wednesday though. On Thursday I called and my mom took me in to get more fluids in Washington.  They did not seem to make a difference this go around.

I was told previously to see my primary if the UTI did not improve.  It seemed to be getting better so I decided to wait until this week because I really didn't want to pick up any infections in the doctors office if I didn't have to.  I continued to feel poorly through the weekend.  Between the indescrible fatigue, numbness in fingers and feet, my restless legs and nausea not to mention not being able to sleep at night it was a long weekend.

On Monday, the UTI came back suddenly.  I called the primary and got an appointment.  Of course the initial sample showed UTI so they are sending off for a culture again.  I keep thinking I should be feeling better, but it hasn't happened yet.  Doctor put me on a 7 day course of Keflex this time.  I'm hoping the thrush does not return and this uncomfortable UTI goes away for good.

I did call and set up my simulation for radiation.  That appointment is this Friday, September 20.  I should find out at that time what my schedule will be.  I'm hoping to get a short trip to Joplin in next weekend as I haven't seen the kids in a while and think that would be a big boost.

Everyone keeps telling me the hard part is over, so let the next step begin.

Ringing of the Bell

Tuesday, September 10 - This past week has been especially brutal for me as far as chemo goes.  The bone, muscle & joint pain as well as numbness in hands and feet have taken their toll on me.  Also contracted a UTI infection which led to two rounds of antibiotics that gave me thrush.  I have also been nauseated and extremely fatigued.

I called my doctor yesterday after the 2nd shot was administered in Washington and they asked me to come in for bloodwork and to get the third shot if needed.  My oncologist would come to the chemo room and talk to me about pain management and to check on my thrush.

So Dane took me in this afternoon.  My white blood counts were up so I did not need the shot.  The doctor came and I asked her since I had had 3 weekly Taxol treatments and 3 biweekly ones if I could reduce next weeks chemo amount.  She looked up the numbers and did some math.  She told me NO MORE CHEMO!  Yes I said NO MORE CHEMO!  Since I have a more aggressive cancer she had scheduled me for a little more, but that I have received what was recommended in the guidelines.  Since I was not tolerating it very well - we are stopping.  God is good!  I got to ring the bell meaning Chemo is done!!!!!

I stayed and received fluids to flush my system and re-hydrate.  They told me if I continued to feel this poorly I could get fluids at any time.

My next step is to call the Radiation Oncologist and get my simulation set up.  They will make a mold for me and tattoo pin size marks to show where the radiation will hit.  More on that as I learn more.

I am super exhausted but yet super stoked at this news.  Continued prayers and good thoughts would be still be appreciated.

Only One More Chemo to Go!

Thursday, September 5 - What another rough two weeks I had.  I kind of feel like a broken record.  More of the same with the bone, muscle and joint pain.  No energy - when I did, I walked some, but couldn't ever go more than 1/2 mile due to weakness and numbness in legs.  The good news is that I wasn't so depressed (at least I didn't think so).

I did go to Schaumburg, IL with Dane last week since he was driving there to deliver an overview on Interference Hunting.  I figured I would keep him company on the drive and just hang out at the hotel the day he had to work.  Thanks mom and dad for keeping Willow again.  We left on Tuesday and I was feeling pretty good until that evening.  I slept most of the next day and we returned home on Thursday.  It was just good to get out and a change of scenery.

On Tuesday, September 3 I called the chemo nurses as I thought I was getting a UTI infection over the weekend.  I had to go to Washington lab and give a urine sample.  They put me on 3 days of Cipro antibiotic.

On Wednesday, September 4, Dane & I headed in for #3 of 4 Taxol infusions.  I had an appointment with the Medical Oncologist, Dr. Coplin first.  I  had decided to ask if I could bypass the Neulasta Injection and what the consequences would be.

She said I could skip it, but since I had these injections after the chemo infusions of Adriamycin/Cytoxin before surgery and they did not affect me at all she thought it was more likely the Taxol.  If I skipped I would go every 3 weeks instead of two like they used to do before the Neulasta shots were available. Consequences on that protocol used to be low wbc with chance of infection and fevers which could end up being in the hospital to run high dose antibiotics.

She suggested that due to my history with low white blood counts on the weekly Taxol - that I have an injection of Neupogen which is like Neulasta only faster acting to stimulate the bone marrow for the white blood cells to grow.  I would get an injection on Friday, Monday and then Tuesday (if my wbc were not up). This would be less of the medicine than getting a whole Neulasta Injection which is slow release over 10 days.  So our thoughts are that it might not be as bad IF its the injections causing it.  If it's the Taxol, then I'm just going to have to put up with it.

A few other questions I had  asked were about port removal after chemo.  She said that she usually leaves it up to the patient.  Some want them out right away and others leave them in for 6 months or so if they aren't bothering them and then get blood drawn and flushed at 3 month visits.  I'll probably get it out before the end of the year so its on this years insurance coverage.

I asked about follow up visits after chemo.  Dr. Coplin said I would be seeing her for the next 10 years for blood work and exams.  We start at every 3 months for a while, then every 6 months - then go to yearly.  I also asked about any scans due to spread of cancer or recurrence. She said not unless something shows up in exams or bloodwork.  She said since I was high risk due to being Triple Negative that it could be done. So that will remain to be seen.

I cannot get a flu shot until after chemo is over and my white blood counts are back up.

So on to the chemo room, same drill - access port, bloodwork - good to go - premeds, then Taxol.  Four hours later we were on our way home.  We decided not to go to dinner for our anniversary until I got my taste buds back.

So one more chemo and then on to radiation.   I am seeing an end in sight.

Joshua 1:9 Have not I commanded thee? Be strong and of a good courage; be not afraid, neither be thou dismayed: for the LORD thy God is with thee whithersoever thou goest 

Chemo #2 of 4 High Dose Taxol

Friday, August 23 -  I saw my surgeon, Dr. Oruwari on Monday, August 12.  She said I healed nicely and won't have to see her except for my preventive yearly exams.  She wrote me prescriptions for a prosthesis and lymphedema sleeve for when I fly.

The time from the last chemo on August 7th  has been the hardest on me thus far.     Most of the time was spent on pain meds and laying around on the couch or recliner napping a lot.  I can't even begin to describe the fatigue I was feeling.  I had a lot of bone pain as well as pain in the muscles and joints.  My fingers and toes are numb and I was feeling quite sorry for myself.  There were times I wondered if I could continue.  I guess I let the depression get the better of me and found myself crying a lot.

By the second weekend I started feeling like myself and tried not to think of the upcoming chemo.  I had an appointment to get fitted for my prosthesis on Tuesday.  Liz (thanks so much)  took me down for that one. It was actually fun and I learned a lot, but it really tired me out.  That's all the detail I'm giving on this topic.

Connie picked me up and we headed in on Wednesday for Chemo #2 of 4 of the higher dose Taxol.  I saw Dr. Coplin and discussed the many side effects I seemed to be having.  I asked her how we know if the chemo is working.  She told me that they don't.  They go by what has been done in the past and has worked for others.  Not really the answer I wanted to hear, but at least she was honest about it.

Dr. Coplin also asked if I had this pain with the ACT cycles as the Neulasta Injection can also cause bone pain.  I told her I did not have this type of pain in the past.  Taxol can also have these side effects, so we really don't know what exactly is causing it.  She told me I could go back on the weekly Taxol if the side effects were less for me.   I said no, I wanted to get it over with, plus when I was on the weekly doses my WBC's were always low that I got turned away a couple of times.  They can give you injections that are faster acting, but my research showed that the same side effects can be present and you have to get 2 or 3 of those injections before the next treatment  - so now I only have two more chemo sessions.  I can do this.

As usual I headed to the chemo room.  After Charlene (my nurse) accessed my port and drew blood, the results showed that I was good to go.  As Connie and I were talking she got a text and said she needed to go call her daughter.  Next thing I know I look up and here she comes back with my other friend, Jill,  from Houston, TX.  Connie said the look on my face was priceless - I started to  cry and Charlene started handing me kleenex.  They pulled off a nice surprise for me at one of my lowest points on this journey.  It was such an amazing emotional boost.  We had a great time catching up.  Connie and Jill were my best friends in high school and I am so happy to say we are still close.

I got scheduled for my Neulasta Injection in Washington for Thursday and my appointment in two weeks - September 4.  Dane will be taking me this time and that's how we will spend our 31st anniversary together. Oh Boy!  Since I usually feel good the day of my chemo, we should be able to have a nice dinner out.

Dane ran me over to Washington on Thursday for the injection.  After checking in, we got to visit with Mary, another friend who has been battling cancer for 6 years.  Mary spoke with me on the phone last week as I was asking her how in the world she keeps going.  She gave me a good pep talk and shared her story with me.   It was good to see and visit with her in person.

Today, Friday, I woke up very tired.  I'm not sure that makes any sense, but that is the best way I can describe it.  So I knew the pre-meds were wearing off and the chemo and/or Neulasta were setting in.  After getting up and eating breakfast and taking my pills, I took a nap.  When I woke up I took a short walk with Willow as I was told moving around could also be helpful.  That;s hard to do when you are so fatigued.  I'm going to try and do it though to help my cause.

I know I had a lot of prayers for strength out there for me so please continue to them.  The support from everyone is what keeps me going.  I wouldn't wish this journey on anyone.

Deuteronomy 31:6 “ …Be strong and courageous. Do not fear or be in dread of them, for it is the Lord your God who goes with you. He will not leave you or forsake you.”

Changes!

Saturday, August 10 -  Sorry for not getting on here sooner to update everyone.  Vacation was great!  It was fun watching Brayden experience some new things - we all had a good time but it was good to get back home.

I had asked my doctor for a prednisone taper as my sciatica was acting up so I would be able to do more on vacation.  She gave it to me, but it really didn't help much so I was unable to do a lot of walking, but made the best of the situation.

As chemo day arrived I found myself having more and more anxiety of having to go through more of this drug that is killing all kinds of cells in my body to keep me alive.  Just makes no sense to me.  I have been staying as positive as I can, but let me tell you, it was wearing on me this past week.  I found myself very weepy and feeling sorry for myself.  It's a hard thing to explain if you haven't been through it.

Fast forward to Wednesday, August 7.  My friend Liz picked me up at 8:15 and we headed in.  I had an appointment with Dr. Coplin first.  After telling her about the numbness I was continuing to have in my foot and hand as well as the pain in my lower calf and the issues with my WBC after the last 3 treatments, she decided we needed to make some changes.

She ordered a doppler on my calf just to make sure there were no blood clots.  It came back negative.  Thank God!  She then decided to have me do the every 2 week treatment with Taxol as the numbness could become permanent if it continued.  Also, this means that I now only have 3 treatments at a much higher dose so I would be finished sooner.  From my previous reading on the drug I knew this could mean different side effects too, but I was willing to try it.  The way I was feeling earlier in the week, I wasn't sure if I could continue for 8 more sessions.

On to the chemo room.  Like always, after accessing my port and taking blood, my WBC were good so let the infusion process begin.  I was premedicated with the usual drugs at new levels and then the Taxol....All went accordingly but took much longer with the higher dose.  I was there about 6 hours.  Blah!

Felt fine Wednesday, Thursday and most of Friday with some fatigue starting to set in.  Started losing my taste again and the dry mouth was very apparent.  Friday evening, my body just started to ache.  My joints, my bones and I felt like crap.  Of course, I got on the internet and read up again on Taxol side effects on the 2 week dose.  It all sounded normal (whatever normal means) for being on this drug.  Went to bed but couldn't get comfortable and the 800 mg of ibuprofen wasn't helping much at all.  Needless to say I had a very restless night getting up a couple times.  I was also having tingling in my fingers and toes.

More of the same this morning - but hanging in there.   From what I read days 3 - 5 are the worse for most people and then things start to improve until next infusion.   I keep chanting to myself- only 3 more times, I can do this!

So if you are reading this, I am asking for prayers for continued strength to get through these last few infusions.  Then after a break I will have radiation.  Christmas this year can't come soon enough for me!!!!

but those who hope in the LORD will renew their strength. They will soar on wings like eagles;they will run and not grow weary, they will walk and not be faint

Isaiah 40:30

Chemo 4 and Holding.........

Wednesday, July 17 -  The past week has been a bit of a challenge for me.  Last Wednesday after chemo I was feeling fine.  That evening I had broken out in a cold sweat and had stomach cramps.  I had some bowel issues and went to bed.  Thursday and Friday I felt pretty good other than being fatigued and a little numbness in my right toes and left fingers.  Saturday and Sunday I had bowel issues, nausea and was just plain tired.  I didn't do much and felt more like myself by Tuesday.  I was a little frustrated at feeling so bad for almost a whole week as this is supposed to be easier than the AC I was on before.

On Wednesday, Connie picked me up for chemo and we headed in.  She brought me a cute hat that I wore and had lots of compliments in the chemo room.  Charlene, my nurse was back after being out for 2 months. She accessed my port and and took my blood to check my WBC.  The result was a 1.3 with the range being 4 - 9.  Pretty low.  They took a look at my ANC (Absolute Neutrophil Count) and it was only .16 or 160.  They want you to be at least 1,000.  These are the fighter white blood cells.  They also look at the immature white blood cells which were also very low.  Therefore, Charlene went to talk to Dr. Coplin who was with a patient.  So after about a half hour Dr. Coplin said to give me a Neulasta Injection which stimulates the white blood cells to grow.  If you remember, I had this injection each time after my last chemo sessions.  Since I am supposed to go weekly, this particular injection isn't used as it takes about a week for those white blood cells to grow.

The reason she did it this time is because I will be going on vacation for a week and won't have my next infusion until August.  Otherwise I would have probably received an injection 2 - 3 times a week called Neupogen which also stimulates the wbc but is faster acting.

I was disappointed but this probably happened so I would be feeling good for vacation just as it happened for the wedding in June.  Hopefully when I start chemo up again in August my white blood cells will start cooperating a little better and I can move along with these treatments and be done.  My hope is still to be finished with chemo and radiation by Christmas.  We'll see!!!!

Chemo #3 of 12 and PT report

Thursday, July 11 - My chemo buddy for the day was my good friend Jo Noelker.  She picked me up on a rainy Wednesday and we headed in.  After a quick run through the boutique we signed in and headed to the chemo room.

I had a nurse (Noreen) that was called over from Mercy Creve Coeur Oncology floor as they were short handed.  Noreen accessed my port, took the blood to check my white blood count and asked me the range of questions about being safe, what meds I'm on and when I last took them blah, blah, blah.  I did have some numbness after the last time in my right toes.  I was told to keep an eye on it and if necessary they would make adjustments to the meds.  I also had them look at the blister that broke and bled from my shoes at the wedding.  They said it wasn't infected and to keep it uncovered as much as possible and continue using the antibiotic ointment.  My hands and feet are also very red, but no pain or peeling.

Results of blood test were WBC 3.2 with range being 4 - 9.8.  Of course, this is under but remember, we are really looking at the ANC (Absolute Neutrophil Count) which was 1.56 or 1560.  They want that number to be at least 1000.  So I passed and she got my pre-meds ready to go.  I got Zofran and Emend for nausea, Pepcid for the inflammation component, Decadron - a steriod, Benadryl for allergic reaction and then the Taxol.  It was interesting to me how she gowned up and put on the rubber gloves.  This medicine is just poison and it's entering my body. 

Everything went as usual.  Jo and I stopped by K-mart on the way home and then to Steak N Shake for a late lunch around 3:30.  The happy hour shake special was going on, so of course we had to indulge.  After we placed our order, the waitress told us that the man that sat behind us gave her a $20 bill before he left to cover our lunch.  What an awesome feeling that was.  

That evening I had some popcorn cause I was pretty full from lunch and shake.  Soon afterward I broke out into a cold sweat and started having stomach cramps.  I'm not sure if this was a chemo reaction or a bowel reaction.  Regardless, it was very uncomfortable and my shirt & head was soaked from sweating.  It passed and I went to bed soon afterward.  Today I just feel tired.  

I did go to physical therapy today.  She did measurements on me again.  They were up a little from last week, but remember, I had a 2 1/2 week break from chemo and that could have been why they were way down last week.  My range of motion is good though and I was released. YAY!  I just need to be mindful of any swelling and let them know right away.

So all in all a good report this week.  Thanks Jo for taking me and passing the time quickly with all the conversation that was non-stop!

I am now in single digit treatments for Taxol which makes me happy!  9 more to go.  Keep those good thoughts and prayers going my friends and family - it really helps!

Back To The Grind

Wednesday, July 3 - Since I had 2 1/2 weeks off from chemo, my taste came back, my energy level was up and I was excited to get to Joplin.  My sciatica and hip pain was acting up, so I called the chemo nurses and was told to do a prednisone taper.  It worked.  Didn't think Thursday would ever get here.  Dane & I spent the afternoon with Brayden while Ann went to K.C. for her party with the girlfriends.

I think the wedding was a great success.  Ann & her sisters Addi, Emme and Heidi as well as her mom, Denise, did an awesome job with the decorations, food - everything.  Well done girls!  The reception was a blast.  The DJ - Complete kept the crowd engaged, played games and didn't take one break.  There were a lot of dancing fools out there, myself included.

Now for my report -   I went to physical therapy on Tuesday and had an excellent report.  My range of motion is almost back to normal.  I still have some swelling, but it is down much more than when I was last there, so more good news.  I will go back again next week to make sure it stays down and then hopefully be released unless I have any signs of the Lymphedema.

Today I met with Dr. Coplin, Oncologist, and she said to continue on our course of weekly Taxol.  If my WBC (white blood cells) is down again they will give me an injection of Neupogen to stimulate the growth of WBC.  I will meet with her again before week 6 of chemo.

So now I'm off to the chemotherapy room where they accessed the port and took the blood sample.  More good news.  My WBC was 6.8 with the range being 4.0 - 9.8.  My red blood cells value was also up (they tell me that red wine I drank at the wedding didn't really affect those, HA).  My platelets were 279 with normal range of 140 - 350.  And that name that eluded me in my last post about the WBC to fight off infection that needed to be at least 1000 and mine was 700 is called ANC (Absolute Neutrophil Count).  More good news - mine was 5000.  Yay for me!  This means I was able to complete Chemo #2 and will not have to get an injection.  We will take that week by week.

So Charli (my nurse) premedicated me with:
Decadron - Steriod
Pepcid - Inflammation Component
Emend - Nausea
Benadryl - Allergic reaction preventative for Taxol
Taxol

All went well, I took about an hour nap after the Benadryl, was de-accessed and sent on my way.

Keep your best wishes, close to your heart and watch what happens” 
― Tony DeLiso, Legacy: The Power Within

Things Happen For A Reason!

Friday, June 21 - Connie picked me up for my Chemo #2 on Wednesday, June 19.  After accessing my port and getting my blood, Laura, my nurse for the day came and told me that my white blood count (WBC) was 2.1 which is pretty low.  They took a look at another important number but the name of it eludes me.  She said they like to see that number at least 1000 and mine was 700.  Evidently a healthy body has thousands of white blood cells.   This particular number are the white blood cells that are in the process of maturing but not quite there yet.

Since white blood cells help the body fight off infection by destroying bacteria, viruses, etc. and the fact that I have a very important wedding to attend on the 29th, they said they would feel better if I skipped Chemo for the week.  I was already taking off next week, so this will give me almost 2 1/2 weeks off for those cells to recover.  I was disappointed that I had to skip, but grateful that they were thinking about the wedding and being in a crowd of people.  I decided to look at it as "things happen for a reason", and this happened to help protect me from getting an infection which could end up being worse than the cancer itself.

Laura scheduled me to see Dr. Coplin on Wednesday, July 3 before chemo #2 to re-assess and make sure this is the path we want to continue.  I believe there is an injection that can be given to help those wbc mature faster if this continues to be a problem.

So Connie and I went and did a little shopping.  We had a good time, got turned around trying to find a couple of specific places, but eventually got where we wanted to go.

On Thursday, June 20 I had physical therapy again with Kristen.  She really gave me a workout as she is on vacation next week and I'm heading to Joplin.  She really pulled and stretched my arm in all different directions as well.  It didn't hurt as bad as that first time, but believe me it wasn't a picnic either.  I am getting good range of motion now and still doing my exercises faithfully.  The two spots of possible lymphedema are better, but still evident.   I will be going back on Tuesday, July 2 to see where we stand and if I will be needing further pt at this time.

Oh yeah, my eyebrows are growing back and so are my eyelashes.  Hair doesn't seem to be doing much more than a couple weeks ago.  So stay tuned.  I probably won't post until after my next appointments!

Ouch!

Monday, June 17 - I haven't posted since before physical therapy.  It was an interesting hour and a half on Friday.  Kristen (my therapist) is the only one in this area certified in Lymphedema.  She was very good at explaining and teaching me about it.  I also came home with a lot of print outs of excercises and literature on it.  It's still a little overwhelming to me.

Scar tissue adheres to muscle and tissue and that is part of the problem.  It has to be stretched and massaged to get it to loosen up.   I was measured around the arms, waist, wrists and chest area in several different places to get a baseline on both sides of my body.  She massaged my scar with instructions to continue doing this at home and gave me tips on noticing any swelling that may be caused by Lymphedema.  Kristen gave me exercises to do for stretching and also exercises to get the lymph fluid moving as I have no lymph nodes under my left arm as they were removed.  She really pulled and stretched my arm.  It brought tears to my eyes.  I was sure glad when she finished.

Lymphedema can occur anytime after breast cancer treatment, even many years later.  If caught early it can be lessened with therapy and self-care.  It can develop from getting an infection on the side of the body that I had surgery on, overuse or trauma to the hand or arm, having more than 10 nodes removed, having multiple nodes with cancer and radiation therapy.  I have to be careful in lifting heavy things, insect bites, sun exposure to that side, cuts, etc.  When flying, I need to wear a compression sleeve which I will get fitted for at a later date.

My spirit took a beating after all that and my mind was whirling.  Dane got home that night and after a good nights sleep, I felt much better on Saturday and back to my more positive self.

I returned to PT today.  My range of motion has greatly improved as I have been faithfully doing my exercises.  I still have swelling in the armpit and below it.  Kristen had given me pressure pads to wear in these two spots.  She said they looked better today, so I will continue using them and see her again on Thursday.

I also have Chemo on Wednesday, so a full week.

I may not be there yet, but I'm closer than I was yesterday.

— Author Unknown

Chemo #1 - Post Surgery

Friday, June 14 - My friend Connie picked me up around 9  on Tuesday, June 11 and we headed in for the dreaded start of my next rounds of Chemotherapy!  It was a quiet day in the room, not much going on.  After getting my port accessed and blood drawn to check my white blood count,  I was pre-medicated with Benadryl to offset any allergic reaction to the drug Taxol.  Laura, my nurse, then gave me an anti-nausea medicine, Pepcid,  which has some inflammation component to it which helps with inflammation of the veins as the drug is administered.  Also a dose of steriod.  Then the Taxol.  Since I am getting the weekly doses, it is a shorter time frame to administer.

As usual, Connie and I had good conversation and laughs.  We had a sandwich while waiting to finish.  I was feeling pretty good, so we went across the street to a resale shop that the nurse told us about called Safers.  It was a really nice, organized and clean one.  And I think we each bought something.  They donate to the Vietnam Veterans.  When we got back to my house we even took a one mile walk.  It felt good to walk again, but I was tired out after all this.

So Wednesday and Thursday I have been experiencing achy muscles and joints and fatigue.  At first I thought I was getting the flu, but Dane reminded me that the doctor mentioned this could be one of the side effects usually lasting a few days after treatment.  It seems to be better today, I went for another one mile walk (Willow loves me again).  I need to try and keep that up at least a few times a week.

So far the Hand & Foot Syndrome has not been too bad.  After I walk or am on my feet for long periods, they are very, very red.  I have had peeling since the last chemo drug and it hasn't completely cleared up yet. So, we shall just take this one day at a time and hope it doesn't interfere with my walking.

The appetite is waning again.  Nothing really sounds appetizing, but I have no nausea (yay) and eat to keep my body strong to recover.

I have Physical Therapy this afternoon in Union and hope to learn about the Lymphedema.  They should be working on my range of motion also.  This has improved over the past week with the couple of excercises that they gave me.  It still feels tight and weird on the left side and uncomfortable to lay on the left side.  So I am hoping to see improvement in this area the next few weeks.  I can put on a t-shirt now though.

Thanks for reading and sending the good thoughts and prayers.  I ask you to please continue as I have a few more months of going through this.  One foot in front of the other, one day at a time.  I feel like I am starting to go down the hill a bit now.

Did You Do Something To My Eyebrow?

Monday, June 10 -  I got up this morning, showered and went to put on my make-up.  I walked out to the living room and asked Dane if he did something to my eyebrow?  He just chuckled.  You have to understand that Jacob came home one night with one eyebrow after losing a bet with his friends. They shaved off one of his.

I had noticed a little bit of thinning the past few weeks, but hadn't been wearing any make-up so didn't pay too much attention.  It was gone.  The other one had about 12 strands, so I just pulled them out with my fingers.  I also noticed I barely have any eyelashes.  BUT, the hair on my head is growing back.  Touch it and you get whisker burn.  Ha!

Now on to the visits today.  We first saw the surgeon.  I am healing fine and the numbness and soreness I am feeling is normal for where I am post surgery.  She went over the pathology report with me.  I again asked if all the lymph nodes under the armpit were removed.  She said yes.  I told her I was surprised that there were only 10.  It seems that the chemo I had before surgery shrunk up what others would have been in the tissue that she removed.  If the pathologist went back and looked again under the microscope, there probably would have been more just very, very small.  Chances of cancer returning on the left side are about 20%.  The only way of knowing if this does happen (and I'm believing that it won't) would be if I felt a lump.

She recommended that I go to Physical Therapy for my range of motion and to learn more about Lymphedema and how to prevent it.  I have an appointment Friday here in Union.  Yay, close to home!

*Lymphedema is a build-up of lymph fluid in the fatty tissues just under your skin. It usually develops slowly over time. The swelling can range from mild to severe. It can start soon after surgery or radiation treatment. But it can also begin months or even many years later. Women who have many lymph nodes removed and women who have had radiation therapy for breast cancer have a higher risk of getting lymphedema.

I will follow-up with Dr. O in August so she can check to see if I'm healing as I should.  I will then see her every year for my preventive screening on the other breast.

On to Dr. Coplin's office.  At first she seemed concerned about having 9 of the 10 lymph nodes with cancer.  After looking more closely at the pathology report, it stated that the 2.5 cm mass removed from the central breast area contained widely scattered individual and small clusters of large cells.  The largest of these cells measuring 0.5 mm in diameter.  That, folks, is pretty small.  It also means the chemo beforehand did it's job.    So we will continue with chemo.

At my last visit with her we evidently had a mis-communication  I thought she said 6 weeks of weekly Taxol.  But it will be 12 weeks at a lower dose with no injection the day afterwards.  The other option is 8 sessions every other week at a higher dose with the Nueulasta injection the day after.

I have opted to go with the weekly and get started tomorrow, then have another one the following week.  I will then take the following week off and resume the first week of July which will be after the wedding. I will also take a break during vacation at the end of July.

My biggest fear is getting that Hand & Foot Syndrome again.  It was pretty painful and I just couldn't do things with my hands.  She said with Taxol it is more of a nerve ending or neuropathy effect.  My hands have recovered but my feet are still peeling.  So time will tell how I react to this drug.  If we need to, we can go to the every other week schedule.

Needless to say I was really bummed because now radiation will probably be pushed off until October.  I thought I was going to be finished with all this by then.  So now that I have wrapped my mind around this, I am ready to move forward, it's just going to be longer than I thought.

Drainfree

Thursday, June 6 -  The past few days my drains have produced less and less fluid.  Drain 2 had been producing about 5 ml the past few days, so I knew that one was coming out for sure.They were both under 30 ml on Saturday evening.  I'm thinking, oh boy, this means I'll get to have both pulled.  Not so fast.  Sunday night Drain #1 decided to produce 39 ml.  I called the nurse on Monday and we scheduled an appointment to have Drain 2  pulled on Wednesday.  This, along with the hope that Drain 1 would give me less than 30 ml the next 2 days.  Happy dance!  On Tuesday night I had 2 readings in a row of 20 ml on Drain 1.  So I knew they were both coming out.  Goodbye and good riddance!

I was actually dreading this procedure even though I was told it wouldn't hurt.  So in preparation, I took some pain meds before heading in.  We got to the doctors office, they told me to take a deep breath and the next thing I knew, they were out.  It was a really weird feeling but did not hurt in the least.  My scar had started blistering a little bit from the tape, so Donna (the nurse) applied some polysporin and covered it with gauze.   The port holes looked good and I was told they would close in a couple of days.  I can start to raise my arm now and do a little bit more reaching.  I am still not to lift over 10 pounds until I get clearance from the surgeon.  That visit will happen Monday, June 10.

Now on to today's visit with the Radiation Oncologist, Dr. Robert Frazier.  This was our initial consultation with him.  He told me that radiation is done after a successful surgery and chemo when greater than four lymph nodes are positive for cancer and the size of the tumor is greater than 5 cm.  Well, I definitely fall into that category.  I will have 33 treatments, Monday through Friday, starting probably the 1st or 2nd week of August.  They will treat all 4 levels of the lymph node area to make sure they get any rogue cancer cells that may be lurking as well as the mastectomy site.  I will see the doctor once a week during this time.

He went over the side effects and risks that are associated with radiation.  The most common is the fatigue which is cumulative for most people.  Again, everyone is different, so we don't know for sure.  I should expect a really red area where its treated and they will give me a cream to use after treatments.  There is a risk of blistering which they can also treat.

He then went into detail on the treatment planning session called a simulation.  I will go to Mercy Hospital - Washington in the middle of July for this session.  A CT scan will be taken of my chest area up to my neck do define the treatment area and get a picture of my anatomy in this area.  I will get 3 tattoo marks to line up the beams on the machine during radiation.

I will also have a mold made that helps me stay in the same position each treatment and  to keep me from moving during therapy.

So other than the aggravation of having to drive over there everyday, it doesn't sound too bad.

"I can do all things through him who strengthens me. [Philippians 4:13]

Climbing Back Up the Hill

Friday, May 31 -  The END of the month of May and what I think is the END of feeling bad from the surgery.  I didn't get much sleep the night before last, so was feeling pretty puny yesterday. I was on the phone a lot with the doctors setting up appointments and visiting with some friends, so I didn't get much in the nap area.  I was afraid to nap anyway as I figured I wouldn't sleep again last night.

The good news is that I went to bed and slept there until 5:30 a.m.  Yay for me!  This hasn't happened in a while even before surgery.  I had a good breakfast, compliments of Dane, and took a shower and dressed in street clothes.  I moved around a little more and was feeling pretty good.  After lunch I was pretty tired so had a 2 hour nap (hope I don't pay for that tonight).

So I'm feeling good about the pathology and getting on with the rest of this journey.  I won't be having my follow-ups with the Surgeon and Oncologist until June 10.  I am still waiting for a call from Mercy Washington Radiation Oncology to see when they want to schedule me.  This little break should give me time to heal before the wedding and the next rounds of chemo.  I'm assuming the chemo will begin the week of June 10 or the following.  Stay tuned!

Talking with the nurse yesterday, I am very hopeful my drains will be pulled next week.  They have been producing much less the last couple of days.  Still aren't where they need to be, but getting closer.  I had several people ask me what the drains are for and following is a synopsis of that:

After any large amount of tissue is removed from inside your body, your body attempts to fill the space with fluid. This fluid (blood & lymph node fluid) will slow your healing process. The purpose of the drains is to remove the fluid. The drain itself is a simple device, and consists of three parts: (a) a flat piece with holes that is inside the body, (b) a length of tubing running from the flat piece through a small incision to the outside of the body, and (c) a plastic bulb at the end of the tubing. The plastic bulb has a small spout and plug on it. The plug is opened, the bulb is squeezed to push air out of the bulb, the plug is closed, and the gentle suction of the bulb over time pulls the fluid out of the body and into the plastic bulb. The fluid collects in the bulb, and the bulb is emptied from time to time.

I want to thank everyone for the kind calls, prayers, cards, meals and gifts during this time.  I am amazed at the caring and support from everyone.  Dane was able to get his mind off work for a few days (although he's now back in the mode again) and pick up the slack around here.  He definitely kept busy with the yard work, housework, shopping and running me to the doctors.  Love that man to death!

After I find out my schedule I will be calling on a few of you to take you up on being my chemo buddy for the day.

Pathology

Wednesday, May 29 -  A couple of hours after writing my last blog entry, I got a call from the surgeon's office with my pathology report.  I was told that it did confirm Invasive Ductal Carcinoma (which is good, cause I sure would have hated going through all of this for nothing).  The report also showed that 9 out of the 10 nodes tested were positive.  Also, margins were clear.  The right side papilloma was benign.

I will be getting a call back tomorrow with appointment follow-ups with the surgeon and the medical oncologist to make sure we are still going with the same treatment due to pathology reports.  I will also have an appointment set up with the radiation oncologist in Washington.

After drains are removed, I will also be seeing a physical therapist for range of motion exercises.  Sounds like I will be busy!

Ouch!

Wednesday, May 29 - So much for pain being tolerable!  Things were going along great - went to my mom's on Monday and had some yummy lunch and a short visit with my parents, Dane's parents, my brother Tom and his daughter Lydia and Bob Scheer.  It felt really good to get out.

Later that afternoon, I started having some bad pain and felt like my armpit and chest area were going to explode.  I upped the pain meds, but just could not get comfortable.  I started to run a low grade fever towards the morning.  I called the surgeons office and was told the doctor would like to see me.  So we headed into C.J. Pratt Cancer Center as that is where she was holding office hours on Tuesday.  My incisions were looking good.  The drains were the color of apple juice and nothing unusual with the output, so that wasn't a problem.  My incisions for the drains were oozing some and red.  She put me on an antibiotic just in case of infection.  There was no pathology reports back yet, so nothing to report in that department.

So Tuesday was a long day.  I did feel better seeing her, though, just to make sure everything was as it should be.  I went to bed and actually slept there for more than 2 hours.  I think I was totally exhausted.  Came out to the recliner and slept another 4 hours, then went back to bed for a couple more.

Feeling much better today!  Although I didn't do much on Monday, I obviously moved around more than normal and it caught up with me.  That is what I think happened anyway.

Hopefully I will have pathology reports by the end of the week!

3-Day Post-Op

Saturday, May 25 -  It's Saturday morning and post-op hasn't been too bad.  The pain has been tolerable and I have been able to keep the pain meds down as long as I have something in my stomach.

I have been walking around the yard a few times a day to give my back some rest.  That has been one of the most difficult parts of recovery as I can't get comfortable enough to sleep on my side.  I can tolerate bed for a couple of hours, then find myself back to the recliner.

Dane has been tending to my drains 3 times a day.  The output has been dark, but today it has started lightening up, which is what we were told to expect.  The drains will be pulled when the output is less than a total of 30 cc a day for each drain.  Right now each one is around 100 cc a day.

I was able to shower Friday afternoon, which always makes one feel better.  Ahhhh!  So, I'm taking one day at a time and expect to be back to normal in the not to distant future.

Surgery

Thursday, May 23 -  I'm just giving a quick update to those of you who aren't on facebook.  Dane tried to update the blog after surgery yesterday but for some reason it wouldn't allow him to publish it.

Surgery went well and according to plan.  They removed all my lymph nodes on the left side, did the mastectomy on the left side and removed the right papilloma.  Surgery was about 2 1/2 hours.  After waking up, I was mildly sore, but not too terrible.  I had trouble keeping anything down most of the afternoon, so that wasn't very pleasant.  I got to my room around 6:30 p.m. and got settled in, ate some chicken noodle soup and took a couple of tylenol.  I was afraid to take anything stronger due to past experiences with those meds.  Since I was the only patient there, I had plenty of attention.  Dane also spent the night with me.  I couldn't sleep worth a darn, so we watched the cardinal game.

Around 10:30 I was feeling hungry so had 1/4 of a sandwich and some fresh fruit.  It was pretty tasty.  I was tired of laying around so Dane and I walked the halls for a little bit.  It really felt good to move around.  I settled back in bed thinking I could go to sleep, but it just wasn't happening.  I watched some more tv, then read a while.  I finally dozed off towards morning.

The doctor came in around 9, checked all my incisions and wrote the discharge papers.  Dane will be in charge of dumping my two drains three times a day and measuring the output.  When each of them measures  less than 30 cc, they will be pulled. The average time for this is 10 days.  The surgeons office should be calling Tuesday (since Monday is a holiday) and letting me know of any pathology reports and to set up some appointments for future treatments (chemo & radiation).

I can't say enough about the compassion and care that this facility has given me.  Everyone has been great, I would highly recommend this place to anyone undergoing breast cancer.

We got home around 10:30 and both took a nap.  I have been taking some Percocet and that seems to be helping with the pain as long as I have food in my stomach.

Thanks again for all the prayers and good vibes.  They seem to be working so keep it up.  I can definitely feel the love and support from all of you!

Nap time!

A Call From The Surgeon

Wednesday, May 15 - After feeling quite puny the past few days, I am feeling much better today.  The fatigue hasn't been so bad, and my feet and hands feel much better.  Now I hope to have a good week before surgery!

I received a call from my surgeon this afternoon.  The breast MRI showed that the tumor has shrunk from 10 centimeters to 3 centimeters.  If you remember, it was 2 centimeters when I discovered it and grew to 10 before I even had my 1st chemo which was within 3 weeks.  This is great news.

Dr. O said I could have a lumpectomy, but having put a lot of thought and prayer into it over the past few weeks,  I have decided to go for the mastectomy instead.  This is mainly due to the uncertainty of whether or not they get clean margins the first time.  I have spoken with several people who had to undergo a second surgery due to this fact.  I decided better to be safe than sorry.  I just don't know if I could handle having to undergo surgery again and then end up with a mastectomy after all.

So I'm off to Washington tomorrow for some pre-surgery blood work and then hoping not to think too much about it until next week.  I'm a little nervous, so this may not be as easy as it sounds.

Dane will be working from home the rest of the month so he can be here for the surgery and whatever help I may need afterwards.

So I'll say goodbye until after surgery - please keep me in your thoughts and prayers!

Not Much To Report Yet!

Monday, May 13 - Saturday we met Adam, Ann and Brayden in Lebanon for breakfast.  It was soooo good to see Brayden since it's been so long.  We had a nice long visit.

I didn't feel too great Sunday, not sure what the problem was.  Took a long nap and just lazed around all day.  My hands and feet were also bothering me but am optimistic that it will get better this week.

On Monday I went and had my breast MRI.  I was told it would be a couple of days before the doctor called with the results and then I should know for sure kind of surgery I will be having.  I will post after getting those results.

Hope all you ladies had a great Mom's Day yesterday!

A Nice Reprieve

Monday,  May 6 -  On Friday morning, Dane & I, along with his brother Neal,  boarded Southwest Airlines for a weekend trip to Houston.  This was another trip that was planned before cancer struck.  I had my last chemo before surgery scheduled a day earlier so I could make the trip.

Dane has been in contact via phone and emails with his distant cousin, George Strake for a couple of years now and has wanted to meet him in person for some time, but has not had an opportunity to work in Houston.  Since the NRA convention was being held there, along with one of my best friends from high school also living there, we decided to take the trip.  I stayed with Jill, while the boys holed up in a hotel and went to the convention.

Upon our arrival we were treated to dinner and a ballgame by George and Annette Strake.  I won't go into  the family history but it was a very interesting evening and a whole lot of fun.  George and his wife Annette  also took us to the Astro's ballgame so we got to see Minute Maid Park.  It was a pretty cool stadium to visit.  We caught the last few innings due to visiting over dinner for so long.  Former cardinal, Rick Ankiel was playing for the Astros .  We did not bring home a win for them though.

Dane then dropped me off at Jill's.  What a great reunion that was.  We stayed up and chatted way too long.  She is one of those friends that you don't see for years, but when you do, it just picks right up where you left off.  Thanks so much Jill, for your hospitality and the great visit.

I slept well that night.  Jill & I mostly just stayed at her house and visited on Saturday.  I did finally get to meet her daughter Emily who I hadn't seen since she was a toddler.  We did take a ride around her stomping grounds and checked out a small Art Festival.  The weather in Houston was good to us.  No humidity and in the 70's while it was raining the whole weekend in St. Louis.

On Sunday, Dane & Neal picked us up for breakfast and we all went and had a great meal at a French breakfast establishment.  I, of course, shared one with Jill as my appetite was starting to wane and nothing really tastes good at this point after chemo.  After we dropped Jill and Emily off, we headed over to some other good friends of Dane's for a short visit.  This is an older man that Dane had gotten very close to while he was just a kid taking on a new job in Houston back in the 70's with the phone company.  Jack taught Dane a lot in those days.  He always tries to visit him when he is down there and I have met them several times also.

I stayed up on my anti-nausea meds and kept it at bay pretty well.  I was starting to feel puny on Sunday which is the 4th day after chemo, so not a surprise.  We had a light lunch at an outdoor cafe (I'm telling you the weather was awesome) then headed to the airport.

I was hoping to sleep on the plane, but I was hot, it was crowded and I couldn't get comfortable.  It was also one of the roughest flights I have ever flown.  Welcome to St. Louis, it was still raining when we got in.  Blah!

We picked up Willow from my parents and headed home.  Got to bed shortly afterwards and I slept like a rock.

So, this is just to let you all know that I am doing well and had a nice break in routine before surgery scheduled for May 22.  We are planning on meeting Adam, Ann and Brayden (whom I haven't seen for  3 months) this Saturday for a Mother's Day brunch.......so excited.

I can tell that the Hand & Foot Syndrome is trying to act up again - so have been using a lot of lotion and hoping it dies back down.  I purposely stayed off my feet this past weekend for this reason.  I am apprehensive, but eager for surgery and to get moving on to the next part of this journey so it can be over.

Attitude is a little thing that makes a big difference!   Winston Churchill

Chemo #4 - Moving Right Along!

Wednesday, May 1 - My dad picked me up at 8:15 and we headed in to the Breast & Cancer Institute for my final chemo before surgery. Yay!  I met with doctor Coplin first.  We discussed the Hand-Foot Syndrome and she looked at my feet.  She said to continue what I was doing with the Lotion and Vitamin B6.  It seems to be working pretty well.  I do notice it is inflamed and sore if I'm on my feet for longer periods or when I wear my tennis shoes and socks and my feet get hot.

She told me that I would probably start on the Taxol about two weeks after surgery.  I will make an appointment to see her the same day that I follow-up with Dr. O a week following surgery.  This will give a better indication as to how I am doing with everything and when to resume.

She also told me that my hair will start growing back in a couple of weeks.  Evidently, I will not lose my hair do to the Taxol.  This was a pleasant surprise for me.  She said I will have little patches of hair by the time Adam & Ann's wedding rolls around.  Ha!  I'm sure it won't be enough though.  Maybe I should just go with it that way - progress will in evident!

On to the chemo room.  I was a bit early so had to go to the waiting room as the nurses were in a meeting.  I was the first one there - usually my appointment is a couple hours later.  We didn't wait too long and they called me back and got me accessed rather quickly.  My blood was drawn and the WBC came back within range so they ordered the drugs from the pharmacy which is right on site with a window to the chemo room. I had Charlene again and she made my appointment for my Neulasta Injection in Washington for the following day and I had her refill my nausea medication.

I thought the time went by quickly thanks to my dad being there to talk to.  Dane got back in town and swung by on his way home, so that was a nice surprise.  I was feeling pretty tired on the way home, so when I got there, I hit the couch, turned on the Cardinal ball game and promptly fell asleep.  Woke up about an hour later and got to see the win.  Go Cards!!!!

So, things are moving right along and I'll have a little bit of respite here before surgery.  Keep those good thoughts and prayers coming - they are much appreciated!!

Hand & Foot Syndrome

Monday, April 29 - Starting on Friday last week my feet started hurting.  It was more like a burning pain.  I didn't really know what was going on - just figured I had been on my feet too long.  It continued into Saturday so I got on the internet and found something called Hand & Foot Syndrome.  This is caused by certain chemo medications and Adriamycin was on the list.  The most widely accepted theory of why this happens is that the small blood vessels in the palms and/or soles break due to use, pressure, or increased temperature, causing an inflammatory reaction and possible releasing the drug into the area. I've read that  it can appear weeks or months after starting treatment.

I found some foot cream and applied it generously and then put on socks.  I kept my feet elevated as much as possible and didn't take as hot of a shower as usual.  They started feeling better and looked a whole lot better.  The swelling and hotness subsided, but still very red.  I can see spots on my hands also so have generously been using lotion on them also.

I did call the chemo nurses this morning and they verified everything and told me to be sure that I mention it to the doctor at my appointment before chemo on Wednesday.  They also told me to take 100 mg. of Vitamin B6 twice a day and continue with a lot of lotion on both areas.  If it gets worse it could start blistering and then infection could set in.  She also said that a few get it with the drugs I'm on but it usually shows up with the "T" drugs, one of which I will be on during my next rounds of chemo.  Hopefully I can stay ahead of it and manage the symptoms so it doesn't get worse.  The break while having surgery will also hopefully help.

Other than than, I have been more fatigued than usual, but feeling well for the most part.  The weather sure has been a mood buster.  I did get out Saturday evening with a group of ladies that get together 1 or 2 times a month and play some cards.  It was nice to see everyone that could make it and catch up!

I have my last Chemo before surgery on Wednesday - so we are moving right along.  Will update everyone after that session.

Great Weekend!

Tuesday, April 23 - We had a fabulous weekend.  Ann's shower was a huge success and it was sooooo good to see family.  After the shower, I was pretty exhausted so rested while Dane, Adam and Ann tended to the yard work.  It was a beautiful day.

On Sunday we went into St. Louis and visited with our friend Joe from Busch Stadium and got some pictures on the field and a inside tour.  Also hit up the Arch and Forest Park (I stayed in the car) for more photos.  It was good to get home as the nausea was starting to set in and I was really tired.

Yesterday (Monday) was day 4 after chemo and the day I felt the worse.   Nausea and sleepy much of the day so took a lot of catnaps.  It was a beautiful day weather wise so I took a walk around the yard and sat outside for a while.  It felt good.  I was afraid I wouldn't sleep Monday night, but no problem there.  I'm thinking I may have overdone it just a bit.

Today, other than the weather, was much better.  I am again staying ahead of the nausea by taking my meds and eating often as well as staying hydrated.  I still feel fatigued, but was told that it was cumulative for many as they go through chemo so am assuming that is what is going on plus the fact that it is so dreary out.

Chemo #3

Friday, April 19 - Let me start out by saying that I put my hummingbird feeder out on Wednesday this week knowing that the scouts are usually out in April.  I wasn't expecting much since the weather has been crazy.  I got super excited after I got home from Chemo #3 and looked out the window and saw a hummingbird at the feeder on Thursday.  That was sure quick and made my day.

I haven't posted because I have been feeling reasonably well after the heartburn issue was resolved.  I did catnap some but kept busy.  Had some emotional ups and downs (thank you Dane for being there) and for some reason dreaded the chemo as it got closer.  I'll try to do better as several people said they had checked the blog and were wondering how I was doing.

I had my 3rd chemo on Thursday the 18th.  My friend Liz picked me up and was my chemo partner for the day.  The weather was really nasty and raining the whole way down.  I got checked in and saw Dr. Coplin, Medical Oncologist.  She examined me and reported that the tumor has shrunk some more.  Since I have an appointment with my surgeon the next day she wanted me to get another mammogram and ultrasound before that visit.

I did find out that after surgery in May, I will be on a different Chemo drug called Taxol.  I will receive this one once a week for 6 weeks.  That was a surprise to me as I was thinking the next one would be every 2 or 3 weeks for 6 times.  Then I got to thinking, YES, once a week means I will be finished sooner, so I can't complain about that.  I haven't researched it a whole lot yet, but understand that some of the side effects will be different.  More fatigue but usually less nausea.  Yay!  Also, no Neulasta injections the day after.  Yay!

Onto the chemo room.  I had Charlene again.  She accessed my port (a little bit of a sting).  The room was busier than usual and I thought we would be running a little late.  My white blood count showed to be in range so she administered my anti-nausea meds, steriods and got my Adriamycin pushed through.  She then started the Cytoxin drip.  Liz and I had some good conversation and the time went by quickly. We went for a late lunch and ran into a health food store and got some ginger tea to help with nausea.  Still raining when we left and an accident on Hwy 100 resulted in us having to turn around and take an alternate route home, but we made it.  Thanks Liz!

My Neulasta shot for Friday was scheduled as well as my 4th chemo for Wednesday, May 1st.  This one will be a day earlier due to a short  trip to Houston with Dane that following weekend.  Excited to visit a couple of friends. This was another planned trip before this all started and I am determined to live life like I planned.

So fast forward to today!  What in the world, winter is back AGAIN!  Picked up my mom and headed into Manchester.  Had a stop to make to get a gift for a baby shower, then went to lunch.  We headed to the Breast and Cancer Institute for the mammogram and ultrasound.  All went smoothly.  I then got my Neulasta injection.  So we were about a half hour early for the appointment with Dr. Ouwari.  

If you remember from a previous post I wanted to talk to her and see if a lumpectomy was still on the table due to the shrinking of the tumor.  I asked her if she got the results from the mammo and ultrasound.  She said she did, but it is not a good indication of the size of the tumor.  When I started the process the tumor was 1.9 centimeters and grew to 9.1 and was very hard.  We know that it has gotten softer, but that could be that the chemo is breaking it up into smaller pieces.  She told me, since I asked for her recommendation, that she was a little reluctant with doing just a lumpectomy due to this factor.  It could be deeper than what we are feeling.  We also discussed that if we did the lumpectomy and the margins around the tumor were sent to  pathology and came back showing cancer cells ( which I know has happened to a few people that I have talked to)  she may have to go back in and remove more tissue.  This could possibly result in her doing a mastectomy after all.  I really appreciate her sensitivity and honesty and feel completely comfortable with her.

A lumpectomy isn't completely off the table yet because I just had my 3rd chemo so it hasn't had time to do its work yet and  I will also have a 4th chemo before surgery.  So we decided to get a breast MRI a week before surgery and approximately 2 weeks after my last chemo.  This would give us a better picture of what we are dealing with.  So for right now, I'm going with the mindset of a mastectomy unless the breast MRI comes back with some convincing information to do otherwise.

I asked Dr. O how many lymph nodes would be removed.  She said that it could be 20 or 30 but they won't know until they get in there to see.  I had multiple lymph node involvement as shown on the PET scan.

I am also having the papilloma removed as it could turn into cancer. 

On a good note, Brayden (my 7 year old grandson) called me Thursday night to see how I was feeling and asked if I wanted to skype.  So we did and it was good to see that cheerful little face.  I took my hat off to show him my baldness expecting him to laugh, but he just grinned real big.  Gotta love that boy!  I haven't seen him in about 3 months as the couple times Adam has been here has not been his weekend to have Brayden.  Hoping to sneak a possible visit in before the surgery.  Dane?  I miss that little boy!  

Adam & Ann will be in tonight as we are having a family wedding shower for Ann on Saturday.  It will be good to be around family and also get to see my new great nephew James.

In conclusion,  I do have a surgery date finally scheduled for May 22.  Yay!  We have a plan and moving forward.  I am still staying positive and all the good thoughts and prayers are definitely helping and still needed, and for that I am thankful to all of you.  

Now faith is the substance of things hoped for, the evidence of things not seen.-Hebrews 11:1

Opening Day! Go Cards!

Monday, April 8 -   A good day for me to watch T.V.  At least for the first seven innings.

Dane & I went out for lunch yesterday.  I was feeling like I wanted to have a nice lunch.  When we got to the restaurant and I started reading the menu - nothing sounded too good.  So we ended up splitting a salad and I had a side order of veggies.  We even went to Wal-Mart and picked up a few groceries and pharmacy items.  By the time I got home, I was ready for a nap.  Another beautiful day out, hope it gets a bit cooler again and doesn't stay hot right off the bat.

When I woke up I had quite a lot of nauseasness.  Yuck!  I also have quite a lot of heartburn that was really starting to drive me crazy.  It hurts to eat, drink or even swallow and nothing really tastes that great right now.   I called the chemo nurses today and they switched that medication, so hopefully it will help.  It seems like my worse days, as far as the nausea, will be the 4th and 5th day.

Tomorrow is another day!

"Cancer is a word - not a sentence"  John Diamond

 

Feeling Good!

April 6 - Had my Nuelasta injection yesterday and almost no body aches which is a side effect.  I did take some ibuprofen before getting it though.  Plus I'm on Claritin and that is one of the drugs they recommend you take to help that side effect.

Chemo #2 is treating me pretty good so far.  Haven't had as much nausea although this is only Day 3.  I have been taking my pills as soon as I feel the least bit of it and again controlling with eating every couple hours and staying hydrated.

Went to bed pretty early last night and I did take a 2 hour nap this morning.  My friend Liz came by and took me for a ride in her Miata.  It was nice to get out in the fresh air and visit.  Flowers are starting to bloom, and the trees are just about busting out.

So I'm hanging in there just fine for those of you who are wondering!

Chemo #2

April 4 - Had a really good night's rest.  Dane is coming home today.  The sun is shining. I donned a blue headband with a Cardinal Cap on my almost hairless head, took a deep breath and am now ready to face the world for the first time with my new look.

Connie Thompson, my chemo buddy for the day, picked me up at 9:00 and we headed in.  Since we were early, we decided to stop in at the gift shop and check out some caps.  WE found a really cute one that Connie said complimented me so I asked the clerk if she had a mirror.  After talking to me and discovering I had just lost all my hair, she grabbed a few more hats and we headed over to the mirror. I, too, really liked the first one.  I tried on a few more and selected another one with pink headband to go under it. I'm feeling better about the whole hair ordeal, especially with a look I fell comfortable with.  Plus I got a 10% discount because it was my first purchase.  Another bright spot in my day!!!!!

On to see Dr. Coplin.  Turns out my BRACA gene mutation results were in.  I do NOT have the gene mutation.  This is great news, not only for me, but also for my sisters.  This, along with the fact that my tumor has shrunk about 3 centimeters (Hooray!) may possibly change the previous surgery decisions I have made.  I will meet with Dr. Oruwari, my surgeon, on my next chemo visit to discuss my options.  I don't want to get my hopes up too high, but may go the lumpectomy route if the tumor continues to shrink.  A little less invasive.

We then moved on to the Chemo room.  My blood was drawn to make sure my blood count was in range to receive the meds.  Results were fine so my port was accessed, no problems there.  I was pre-medicated with a steriod (Dexamethasone) two anti-nausea meds (Emend & Aloxi).  The nurse pushed through the port my Adriamycin and then my Cytoxin was given by IV drip.  A little over 3 hours and we were ready to leave.  The chemo nurses have great attitudes and are very attentive.  I have nothing to say but good about this facility.  Makes the journey easier, that's for sure.  Connie and I had some good laughs and conversation so the time went by quickly (at least for me).

I was feeling pretty good, so we went up Manchester road and ate at Penn Station.  We then stopped at Ross Dress for Less down the road.  I was getting tired after that, so we headed home.

Today was a Great day, only 2 more Chemo sessions until surgery in May.  Thanks for reading and keep sending those prayers and thoughts, they are definitely working.

Things are Getting a Little Hairy Around Here!

April 3 -  Tuesday I woke up feeling fine, no nasea or anything, just a mild headache.  I was sitting and reading in my chair and had an itch on my head.  So, of course, I reached up and scratched it.  Lo & behold, 3 or 4 strands of hair came out.  Uh Oh, I thought, its beginning. I decided since I felt pretty good other than an annoyoing headache, and I was a little more nervous about the upcoming chemo - maybe I should get a massage.  Then I thought, "Is that even allowed?"  I called the nurse at the doctors office and she told me as long as they used light to medium pressure and stayed away from the lymph node area on the left side, I should be ok and have fun.  Remember, I haven't had surgery yet.

So off I go to Mind, Body, Spirit for a massage session with Heather.  She also told me that massage and cancer are a contraindication to each other.  The thinking on this is that even though massage gives you stress release and relaxation, the jury is still out whether it spreads cancer.  Heather did the massage, staying away from my lymph node area.  It felt so good!

After going home and doing a few chores, I sat down.  I was kind of starting to feel like the dog shedding hair everywhere.  I started to get worked up so I called my parents and asked if they would be willing to come out and shave my head the next day.  Naturally, I broke down.  This was a surprise to me.  First of all, I always seem to cry when I talk to my mom about this kind of stuff.  Always happened when I was worried about Adam or Jake during some medical issue.  The surprise was that I had been talking to my brother earlier and we were laughing about it.  I've discussed losing my hair with several people and it never seemed to bother me.  Why did it hit me all of a sudden when I was expecting it?  Not sure, but I worked through it.

I think I was having a pity party because not only do I lose my hair, but I'm  also told no massages, pedicures or hot tubs.  But oh boy, but I can get cancer!!  On a good note, since the hair fell out when it was supposed to I'm taking it as a sign that the chemo is working.

Mom & Dad came out this morning and did the dirty deed.  I'm not completely bald yet, will let Dane complete it when he gets home tomorrow.

Having another good day and getting some house chores done.  Then its off to the Breast & Cancer Institute tomorrow for Round #2.  Not sure what to expect this time, but hope it is as tolerable as the last.