Wednesday, September 18 - Here I am at 4:00 a.m. not able to sleep again. I thought it would be a good time to update the blog on what has been going on the past week. I am excited that I do not have to go to chemo today as originally scheduled. In fact, I'm still trying to get over the last one two weeks ago. I was told that most people (about 95%) breeze through Taxol treatments, but unfortunately I was in the 5% that didn't do so great.
When Dane and I went in last Tuesday, September 10 I was super excited to hear this news as previously reported. The fluids I received seemed to help some. I was right back to feeling awful again on Wednesday though. On Thursday I called and my mom took me in to get more fluids in Washington. They did not seem to make a difference this go around.
I was told previously to see my primary if the UTI did not improve. It seemed to be getting better so I decided to wait until this week because I really didn't want to pick up any infections in the doctors office if I didn't have to. I continued to feel poorly through the weekend. Between the indescrible fatigue, numbness in fingers and feet, my restless legs and nausea not to mention not being able to sleep at night it was a long weekend.
On Monday, the UTI came back suddenly. I called the primary and got an appointment. Of course the initial sample showed UTI so they are sending off for a culture again. I keep thinking I should be feeling better, but it hasn't happened yet. Doctor put me on a 7 day course of Keflex this time. I'm hoping the thrush does not return and this uncomfortable UTI goes away for good.
I did call and set up my simulation for radiation. That appointment is this Friday, September 20. I should find out at that time what my schedule will be. I'm hoping to get a short trip to Joplin in next weekend as I haven't seen the kids in a while and think that would be a big boost.
Everyone keeps telling me the hard part is over, so let the next step begin.
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